My name is Rachel; when I was 12 years old I was diagnosed with (MDS) Myelodysplastic Syndrome Monosomy 7. I underwent a bone marrow transplant, and many occurrences of Graft vs Host Disease (GvHD).
For the majority of five years I was home-bound, unable to go to school and lost connection with my friends. My teen years were spent isolated and alone and it changed who I am and who I was to be. If RJ's had existed when I was 12, it could have been mysafe haven, a place to provide support for me and others like me. I don't want other children to go through what I went through.
My name is Weston and I was diagnosed with a rare & deadly form of leukemia (JMML) three weeks after my 8th birthday. My only hope for a cure was to have a bone marrow (stem cell) transplant. I lived in the hospital for 4 months and when I got home, I was home-bound and isolated for almost a year . I couldn't attend school, see my friends, play sports, or go to public places. It was hard not being around other kids and I was really lonely. Having a place like RJ's would have made things so much better and I would have had other kids to talk to and feel like I wasn't the only person going through something so very difficult.